Little girl climbing up mummy's bed to share the warmth and fun
Our little princess, eventually evicting the mummy off the bed, and enjoying herself watching TV
As always, some comfort food and snacks for any chalet :)
A nice table with lots of space too. Internet connection was especially slow and intermittent today
Janelle showing off excitedly her creative drawing skills
Drawing completed finally with her various stamps and some practise writing
12:12 AM
Shufen has completed her quarterly blood vessel ballooning this morning and is currently resting comfortably in the hospital ward.
Since it is the school holidays, we brought Janelle along too.
"So good" says Janelle, have air-con here, and the bed can go up and down :)
Thanks for praying for us! God is good, all the time.
4:34 PM
Met up with Dr Kee yesterday, and the antibody levels though decreasing are still on the high side. Hence we are deciding to go for another round of IVIG next Tue. The schedule will be pushed back another month, and we should be looking at a January 2013 transplant operation instead. Though abit frustrating but I guess we have to be patient and explore relatively safer medical options. We would also have to reapply for the TEC, which would have to grant us another 60 days for the transplant. Another round of going through interview etc, as no extension was allowed by MOH.
After 2 rounds of IVIG, blood crossmatch has turned negative, which is a good sign to go ahead with transplant, though the flow cytometry matching test is still showing positive (which is not good for longer term graft survival). Living donor transplants can typical last about 15 yrs, if everything is managed properly, which would mean that our kids would be in their teens. Eventually the transplant graft would fail, and it would be back to dialysis. Or in worse case, being called back to the Lord.
Though we are hopeful, yet we are realistic, as our kidney, bodies and lives are temporal and definately have a fixed lifespan in this world :)
12:21 PM